The topic of recent months continues to be the CSU awareness campaign and the press conference we had at SPFW.
A CDD – Daily Chronicles – recently published a video showing the best moments of this event.
In this video you can see in full what our speech was like in the Press conference, which was a super important moment to talk about the disease and the significant impact it has on quality of life. Several media outlets were present there and now we can closely follow the positive repercussions that all of this brought.
As a patient, and representing 3000dias, I thought it was important to mention how unacceptable it is we suffer due to lack of information in an era where we have so much content and technology on so many topics.
It is always a challenge to represent patients when we are invited for interviews and chats about the disease, but we believe we are on the right path!
Check out the video of the press conference below:
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