** Post sponsored by Novartis
One of the main difficulties of UCE is its diagnosis . Yours symptoms They are typically confused with allergies and patients often receive this – wrong – diagnosis of the disease.
According to one research carried out by Ipsos recently , 79% of the patients interviewed were diagnosed with allergies, when it was actually CSU.
Most doctors still do not know the mechanism behind chronic spontaneous urticaria and believe it is an allergic reaction to a certain thing, when in fact it is not.
That's exactly how it happened to me!
And reading this content and knowing about this research makes me feel less alone on this confusing path I was taking with my illness. The impression I had sometimes was that she didn't even exist, it was so difficult to discern what was really happening to me.
I even thought that I was the one causing the illness – because of my feelings, thoughts, stress levels.
Having this kind of conclusion only made everything worse!
Chronic spontaneous urticaria – CSU – is an autoimmune disease, the immune system itself causes the release of histamine that generates symptoms and skin irritation. We at 3000dias made a video explaining a little how this happens, look here .
Unfortunately, there is not yet an exam that can be taken and the sentence will come out: YOU HAVE CSU. Today the diagnosis of the disease is made by exclusion – removing other types of disease and hives that can confuse this process.
In the meantime, many mistakes can happen. The false diagnoses, the attempts to stay away from food when, in truth, it is nothing about them and in my opinion, the worst event: the patient's feeling of guilt.
I remember hiding as quickly as possible in the morning, when I woke up and found myself having symptoms, because I knew I was going to be asked if I was following the proposed diets correctly. And even though people didn't charge me about it, I felt kind of unable to help myself, since I failed again in my mission to wake up without symptoms.
The itching, the shame of the symptoms, the damage to social life and all the questioning about the quality of life that CSU causes is already a very difficult burden to deal with, adding all this to the guilt for your symptoms only makes it worse!
Anyone who lives with a type of autoimmune disease needs to know one thing: it's not about yourself!
It is the type of disease that manifests itself without you having control, it is a disorder of your own organism and you could not predict it.
Breaking the taboos that exist around cause versus effect is the main attitude you should take, and from there free your life from all guilt.
You have hives and It's definitely not your fault.
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