By Sueli Silva Barros
I have had UCE for nine years, and I only discovered the diagnosis of this disease in 2017.
For me, the hardest thing was dealing with the fact that people didn't know about the disease, so I think the 3000 days blog is important. On the 3000th day, I learned better about UCE, which helped me find a doctor who actually gave me the correct diagnosis, and I had already visited several doctors...
The disease still limits me a lot. But the important thing is to live one day at a time!
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